The Dual Diagnosis Diaries | Kia’s Journey 💜
Where chronic illness, resilience, advocacy, and hope come together. Sharing stories. Building community. Inspiring hope.
MuSK+MyastheniaGravis
-
The Dual Diagnosis Diaries | Kia’s Journey 🌻 Same Infusion, Different Address, A Little More Peace
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey 🌻 Same Infusion, Different Address, A Little More PeaceToday marked my first Rystiggo infusion in my new home—a peaceful escape from the usual household chaos. Surrounded by plants,…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Going Back to Cali — One Last Trip With My Uninvited Roommates ✈️💜
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Going Back to Cali — One Last Trip With My Uninvited Roommates ✈️💜My Reno adventure spiraled into chaos—conference fatigue, questionable coffee, and stairs that tested my limits. Sleep vanished, and my goal…
-
The Dual Diagnosis Diaries: 💜 The Emotional Labor of Being a Patient — When Managing Your Health Becomes Another Full-Time Job
↳
≻: The Dual Diagnosis Diaries: 💜 The Emotional Labor of Being a Patient — When Managing Your Health Becomes Another Full-Time JobChronic illness turned my inbox into a full-time task force—appointments, insurance, and treatments—without a single interview. Now I’m the unsung…
-
The Dual Diagnosis Diaries: 💜 Invisible Doesn’t Mean Imaginary — The Reality Behind the Smile
↳
≻: The Dual Diagnosis Diaries: 💜 Invisible Doesn’t Mean Imaginary — The Reality Behind the SmileBehind every smile lies the complexity of invisible disabilities—conditions that limit movement, breathing, and daily tasks. From inflammatory bowel disease…
-
The Dual Diagnosis Diaries: 💜 When Sleep Isn’t Enough — The Exhaustion Nobody Sees
↳
≻: The Dual Diagnosis Diaries: 💜 When Sleep Isn’t Enough — The Exhaustion Nobody SeesChronic illness fatigue isn’t ordinary tiredness. Between Crohn’s disease draining my energy and Myasthenia Gravis weakening my muscles, even eight…
-
The Dual Diagnosis Diaries: 💜 The Hidden Reality of Chronic Illness — What You Don’t See
↳
≻: The Dual Diagnosis Diaries: 💜 The Hidden Reality of Chronic Illness — What You Don’t SeeThe world sees me thriving—laughing, planning, moving forward—but chronic illness turns exhaustion into a silent adversary. Each day demands energy…
-
The Dual Diagnosis Diaries: 💜 Some Weeks, Surviving Is the Victory
↳
≻: The Dual Diagnosis Diaries: 💜 Some Weeks, Surviving Is the VictoryFriday marks progress, and for many, surviving another week is its own victory. Chronic illness turns routine into a strategic…
-
The Dual Diagnosis Diaries: 💜 Same Diagnosis, Different Journey — Why One Size Does Not Fit All
↳
≻: The Dual Diagnosis Diaries: 💜 Same Diagnosis, Different Journey — Why One Size Does Not Fit AllSharing the same diagnosis doesn’t mean sharing the same journey. From symptoms and disease severity to treatments and outcomes, every…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Whoever Has My Voodoo Doll, We Need to Talk! 😂💜
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Whoever Has My Voodoo Doll, We Need to Talk! 😂💜Living with Crohn’s and MG feels like cohabitating with unpredictable tenants. Crohn’s disrupts my digestion, and MG controls my movements—both…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Apparently, My Roommates Are Coming to Alaska
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Apparently, My Roommates Are Coming to AlaskaPreparing for an Alaska cruise means packing layers, medications, backup plans—and apparently two uninvited roommates. Crohn’s and MG refuse every…
-
The Dual Diagnosis Diaries: 💜 When Fatigue Isn’t Just Fatigue
↳
≻: The Dual Diagnosis Diaries: 💜 When Fatigue Isn’t Just FatigueFatigue isn’t always “just being tired.” Living with both Crohn’s disease and Myasthenia Gravis has taught me that one drains…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Why Me?
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Why Me?This morning, I asked God a question I’ve carried more than once: Why me? Why Crohn’s? Why Myasthenia Gravis? I…
-
The Dual Diagnosis Diaries: 💜 When Sleep Became a Breathing Test
↳
≻: The Dual Diagnosis Diaries: 💜 When Sleep Became a Breathing TestWhen sleep became a nightly struggle to breathe, I learned my exhaustion wasn’t just fatigue—it was my body fighting to…
-
The Dual Diagnosis Diaries: 💜 COVID-19, Myasthenia Gravis, and the Search for Answers
↳
≻: The Dual Diagnosis Diaries: 💜 COVID-19, Myasthenia Gravis, and the Search for AnswersLiving through the COVID-19 pandemic while managing Crohn’s disease, I never imagined another autoimmune diagnosis was waiting. This diary explores…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 You’re Too Young to Be Going Through That
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 You’re Too Young to Be Going Through ThatSometimes the words “You’re too young to be going through all that” are meant with love—but chronic illness doesn’t care…
-
The Dual Diagnosis Diaries: 💜 Crohn’s Disease and Myasthenia Gravis: More Than a Coincidence?
↳
≻: The Dual Diagnosis Diaries: 💜 Crohn’s Disease and Myasthenia Gravis: More Than a Coincidence?When I was diagnosed with Crohn’s Disease in 2006, I never imagined I’d later develop MuSK-positive Myasthenia Gravis. Could it…
-
The Dual Diagnosis Diaries: 💜 Why Did It Take So Long? Understanding Why Myasthenia Gravis Is So Difficult to Diagnose
↳
≻: The Dual Diagnosis Diaries: 💜 Why Did It Take So Long? Understanding Why Myasthenia Gravis Is So Difficult to DiagnoseAfter months of unanswered questions and normal test results, I finally learned why Myasthenia Gravis is known as “the great…
-
The Dual Diagnosis Diaries | Kia’s Journey🌻 The New Normal…Again
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey🌻 The New Normal…AgainWhat happens when your “new normal” keeps changing? In this heartfelt reflection, I share how Crohn’s Disease and Myasthenia Gravis…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Dear Life: Open Letter to the University of Hard Knocks
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Dear Life: Open Letter to the University of Hard KnocksSome lessons in life teach us. Others practically require a dissertation. After decades of chronic illness, unexpected challenges, and enough…
-
The Dual Diagnosis Diaries|Kia’s Journey: 🌿Between Herbs and Hospitals: Finding Balance with Crohn’s and MG
↳
≻: The Dual Diagnosis Diaries|Kia’s Journey: 🌿Between Herbs and Hospitals: Finding Balance with Crohn’s and MGBut chronic illness has a funny way of making us willing to try almost anything in hopes of feeling better.…
-
The Dual Diagnosis Diaries: 💜 Disability Pride Month: We Matter
↳
≻: The Dual Diagnosis Diaries: 💜 Disability Pride Month: We MatterJuly is Disability Pride Month—a time to celebrate disability identity, culture, community, and advocacy. In this deeply personal entry, Kia…
-
The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Who’s Is That?
↳
≻: The Dual Diagnosis Diaries | Kia’s Journey: 🌻 Who’s Is That?After a long and exhausting day, Kia pushed through fatigue to support a friend pursuing her dreams in a new…
-
The Dual Diagnosis The Roommates I Never Asked For
↳
≻: The Dual Diagnosis The Roommates I Never Asked ForIf Crohn’s Disease and MuSK+ Myasthenia Gravis were people, they would be the world’s worst roommates. Neither was invited. Neither…